Spots Global Cancer Trial Database for desmoid fibromatosis

Every month we try and update this database with for desmoid fibromatosis cancer trials from around the world to help patients and their families find trials that might be right for them.
We offer this 100% free of charge and do not endorse any of the trials listed here, we hope it helps you or a loved one.

The following info and data is provided "as is" to help patients around the globe.
We do not endorse or review these studies in any way.

Study title	NCT ID	Conditions	Interventions	Eligibility	Organization
Observing People With Desmoid-Type Fibromatosis	NCT04281381	Desmoid Fibroma...	Cross-sectional...	18 Years -	Memorial Sloan Kettering Cancer Center
Project: Every Child for Younger Patients With Cancer	NCT02402244	Carcinoma In Si... Central Nervous... Childhood Immat... Childhood Lange... Childhood Matur... Congenital Meso... Desmoid Fibroma... Ganglioneuroma Lymphoprolifera... Malignant Solid... Melanocytic Neo... Myeloproliferat... Neuroendocrine ... Stromal Neoplas...	Cytology Specim... Medical Chart R...	- 25 Years	Children's Oncology Group
Project: Every Child for Younger Patients With Cancer	NCT02402244	Carcinoma In Si... Central Nervous... Childhood Immat... Childhood Lange... Childhood Matur... Congenital Meso... Desmoid Fibroma... Ganglioneuroma Lymphoprolifera... Malignant Solid... Melanocytic Neo... Myeloproliferat... Neuroendocrine ... Stromal Neoplas...	Cytology Specim... Medical Chart R...	- 25 Years	Children's Oncology Group
Observing People With Desmoid-Type Fibromatosis	NCT04281381	Desmoid Fibroma...	Cross-sectional...	18 Years -	Memorial Sloan Kettering Cancer Center
Individual Patient Compassionate Use of Nirogacestat	NCT05041036	Desmoid Tumor NOTCH Gene Muta...	Nirogacestat (G...	-	SpringWorks Therapeutics, Inc.
A Study of a New Drug, Nirogacestat, for Treating Desmoid Tumors That Cannot be Removed by Surgery	NCT04195399	Desmoid Fibroma... Recurrent Desmo... Unresectable De...	Biospecimen Col... Computed Tomogr... Echocardiograph... Magnetic Resona... Nirogacestat Quality-of-Life... Questionnaire A... X-Ray Imaging	12 Months - 18 Years	Children's Oncology Group
Nivolumab and Ipilimumab in Treating Patients With Rare Tumors	NCT02834013	Acinar Cell Car... Adenoid Cystic ... Adrenal Cortica... Adrenal Gland P... Anal Canal Neur... Anal Canal Undi... Angiosarcoma Apocrine Neopla... Appendix Mucino... Bartholin Gland... Basal Cell Carc... Bladder Adenoca... Breast Metaplas... Cervical Adenoc... Cholangiocarcin... Chordoma Colorectal Squa... Desmoid Fibroma... Endometrial Tra... Endometrioid Ad... Esophageal Neur... Esophageal Undi... Extrahepatic Bi... Extramammary Pa... Fallopian Tube ... Fallopian Tube ... Fibromyxoid Tum... Gallbladder Car... Gastric Neuroen... Gastric Squamou... Gastric Undiffe... Gastrointestina... Gestational Tro... Giant Cell Carc... Human Papilloma... Intestinal Neur... Intrahepatic Ch... Lung Neuroendoc... Lung Sarcomatoi... Major Salivary ... Malignant Odont... Malignant Perip... Malignant Solid... Malignant Testi... Metastatic Mali... Metastatic Pitu... Minimally Invas... Mixed Mesoderma... Mucinous Adenoc... Mucinous Cystad... Nasal Cavity Ad... Nasal Cavity Ca... Nasopharyngeal ... Nasopharyngeal ... Nasopharyngeal ... Oral Cavity Car... Oropharyngeal U... Ovarian Adenoca... Ovarian Germ Ce... Ovarian Mucinou... Ovarian Squamou... Ovarian Transit... Pancreatic Acin... Pancreatic Neur... Paraganglioma Paranasal Sinus... Paranasal Sinus... Parathyroid Gla... PEComa Penile Squamous... Peritoneal Meso... Placental Chori... Primary Periton... Pseudomyxoma Pe... Rare Disorder Scrotal Squamou... Seminal Vesicle... Seminoma Serous Cystaden... Small Intestina... Small Intestina... Spindle Cell Ne... Teratoma With S... Testicular Non-... Thyroid Gland C... Tracheal Carcin... Transitional Ce... Ureter Adenocar... Ureter Squamous... Urethral Adenoc... Urethral Squamo... Vaginal Adenoca... Vaginal Squamou... Vulvar Carcinom...	Biospecimen Col... Computed Tomogr... Echocardiograph... Ipilimumab Magnetic Resona... Nivolumab	18 Years -	National Cancer Institute (NCI)
Individual Patient Compassionate Use of Nirogacestat	NCT05041036	Desmoid Tumor NOTCH Gene Muta...	Nirogacestat (G...	-	SpringWorks Therapeutics, Inc.
A Prospective Clinical Study on the Safety and Efficacy of Radiofrequency Ablation for the Treatment of Patients With Desmoid Tumors	NCT06355921	Desmoid Tumor Desmoid Fibroma... Desmoid	radiofrequency ...	18 Years - 75 Years	Blokhin's Russian Cancer Research Center
Doxorubicin Eluting Intra-arterial Embolization for Aggressive Desmoid Fibromatosis	NCT03966742	Desmoid Desmoid Fibroma... Desmoid Neoplas... Desmoid Tumor C... Aggressive Fibr... Fibromatosis De... Desmoid Fibroma...	Drug Eluting Be...	3 Years - 80 Years	Rabin Medical Center
Observing People With Desmoid-Type Fibromatosis	NCT04281381	Desmoid Fibroma...	Cross-sectional...	18 Years -	Memorial Sloan Kettering Cancer Center
Observing People With Desmoid-Type Fibromatosis	NCT04281381	Desmoid Fibroma...	Cross-sectional...	18 Years -	Memorial Sloan Kettering Cancer Center

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