Neoplasms

Immune System Diseases

All Conditions

Blood and Lymph Conditions

Behaviors and Mental Disorders

Heart and Blood Diseases

Skin and Connective Tissue Diseases

Rare Diseases

Mastocytosis

Leukemia

Aggression

Telangiectasis

Urticaria

Mastocytosis, Systemic

Leukemia, Mast-Cell

Mastocytosis, Cutaneous

Mastocytoma

Urticaria Pigmentosa

Neoplasms, Connective Tissue

Neoplasms, Connective and Soft Tissue

Neoplasms by Histologic Type

Mast Cell Activation Disorders

Systemic Mastocytosis

Cutaneous Mastocytosis

Anthony L Boral, MD, PhD

The Mast Cell Connect Registry is a voluntary, observational database that will capture demographic, socioeconomic, and disease information directly from patients with mastocytosis via a secure web-based tool. No experimental intervention is involved.

Mastocytosis is an extremely rare and heterogeneous spectrum of diseases characterized by the buildup of genetically altered mast cells. Patients experience a wide range of symptoms and in some cases, mast cell buildup can lead to organ dysfunction and failure. Current treatments address disease symptoms and not the underlying cause. To facilitate the development of new therapies for mastocytosis, it is important for the community to support clinical trials and to document the impact of the disease, including disease natural history and the impact on patients, in a systematic way. Mast Cell Connect is a web-based registry that allows mastocytosis patients and caregivers to enter information about the experience of the patient living with mastocytosis directly into an online data collection tool.

The Mast Cell Connect Registry allows mastocytosis patients and caregivers to enter information about the experience of the patient living with mastocytosis directly into a web-based data collection tool. Two forms of data will be collected: responses to surveys administered on the web-based portal, and de-identified data curated from medical reports uploaded by patients or their caregivers.

Mast Cell Connect: A Registry for Patients With Mastocytosis

PatientCrossroads

Blueprint Medicines Corporation

Study title	NCT ID	Conditions	Interventions	Eligibility	Organization	Link
Mast Cell Connect: A Registry for Patients With Mastocytosis	NCT02620254	Mastocytosis		-	Blueprint Medicines Corporation
Mast Cell Connect: A Registry for Patients With Mastocytosis	NCT02620254	Mastocytosis		-	Blueprint Medicines Corporation

Spots Global Cancer Trial Database for diffuse cutaneous mastocytosis