Spots Global Cancer Trial Database for Cardiac Amyloidosis Registry Study
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Trial Identification
Brief Title: Cardiac Amyloidosis Registry Study
Official Title: Cardiac Amyloidosis Registry Study - A Multi-Center, Longitudinal, Observational Survey of Patients With Cardiac Amyloidosis
Study ID: NCT05174338
Conditions
Interventions
Study Description
Brief Summary: This registry is a observational, multi-center study designed to collect data and analyze it retrospectively on patients with cardiac amyloidosis who have been evaluated and treated at major amyloid centers across the US and internationally between 1997 and 2025.
Detailed Description: Amyloidosis is a rare, multisystem disorder in which an insoluble protein is deposited in tissues, leading to organ dysfunction. Several proteins have been identified to potentially lead to amyloid cardiomyopathy (AC). Given the rare nature of these diseases, a large, multi-center effort to describe the characteristics of these patients and their outcomes with novel treatment modalities has not been established. (TBD) academic medical centers from the US and internationally will compile demographic, hemodynamic and organ-involvement data, as well as treatment strategies for AL and TTR amyloidosis. This registry is an observational, multi-center study designed to collect data and analyze it retrospectively on patients with cardiac amyloidosis who have been evaluated and treated at major amyloid centers across the US and internationally between 1997 and 2025. It is expected that the total patient population will be approximately 5000 patients.
Keywords
Eligibility
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Locations
University of Arizona Sarver Heart Center, Tucson, Arizona, United States
UC San Diego Health, Sulpizio Cardiovascular Center, La Jolla, California, United States
Scripps Health, La Jolla, California, United States
University of California Davis, Sacramento, California, United States
University of California, San Francisco, San Francisco, California, United States
MedStar Health and Vascular Institute/Georgetown University School of Medicine, Washington, District of Columbia, United States
Johns Hopkins University School of Medicine, Baltimore, Maryland, United States
Tufts Medical Center, Boston, Massachusetts, United States
Massachusetts General Hospital, Boston, Massachusetts, United States
Boston Medical Center, Boston, Massachusetts, United States
Saint Luke's Hospital of Kansas City, Kansas City, Missouri, United States
Washington University in St. Louis, Saint Louis, Missouri, United States
NYU Langone Health, New York, New York, United States
Weill Cornell Medicine, New York, New York, United States
The Mount Sinai Hospital, New York, New York, United States
Columbia University Irving Medical Center, Clinical Cardiovascular Research Laboratory for the Elderly (CUMC/CCRLE), New York, New York, United States
Duke Health, Durham, North Carolina, United States
Penn Presbyterian Medical Center, Philadelphia, Pennsylvania, United States
Medical University of South Carolina, Charleston, South Carolina, United States
University of Texas Southwestern Medical Center, Dallas, Texas, United States
University of Texas Health Science Center at Houston, Houston, Texas, United States
University of Utah, Salt Lake City, Utah, United States
University of Calgary, Calgary, Alberta, Canada
Contact Details
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