Spots Global Cancer Trial Database for International Rare Brain Tumor Registry
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Trial Identification
Brief Title: International Rare Brain Tumor Registry
Official Title: International Rare Brain Tumor Registry
Study ID: NCT05697874
Interventions
Study Description
Brief Summary: The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.
Detailed Description: The International Rare Brain Tumor Registry (IRBTR) is a prospective observational study that will collect tumor samples and matched clinical and radiological data to better understand the outcomes of patients with rare brain tumors in particular: CNS sarcoma, BCOR, MN-1 altered tumors, and other unclassified rare brain tumors. Data collected include demographics, disease characteristics, treatment information, radiological imaging, and biospecimen collection if available ( tumor tissues Patients will be followed longitudinally to obtain outcome data. Data collection will continue for approximately 10 years.
Eligibility
Minimum Age:
Eligible Ages: CHILD, ADULT
Sex: ALL
Healthy Volunteers: No
Locations
Children's National Hospital, Washington, District of Columbia, United States
Contact Details
Name: Adriana Fonseca, MD
Affiliation: afonsecash@childrensnational.org
Role: PRINCIPAL_INVESTIGATOR
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