Spots Global Cancer Trial Database for Investigating the Needs of Childhood Cancer Survivors: The Unreported Experience

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Trial Identification

Brief Title: Investigating the Needs of Childhood Cancer Survivors: The Unreported Experience

Official Title: Investigating the Needs of Childhood Cancer Survivors: The Unreported Experience

Study ID: NCT01073735

Conditions

Childhood Cancer

Interventions

Study Description

Brief Summary: This feasibility study will determine the psychometric adequacy of a newly developed instrument - Childhood Cancer Survivor Study Needs Assessment Questionnaire (CCSS-NAQ). Additionally, the study will explore the feasibility of selected study methods -- sample selection, length of time to complete recruitment, and response rates - in order to inform a larger national periodic survey of adult survivors' health related needs

Detailed Description: This study will focus on the following primary and secondary objectives: 1. Examine the construct validity, short-term stability, internal consistency and item-response performance of a health-related needs assessment self-report instrument for adult childhood cancer survivors 2. Inform future sample stratification by over-sampling minority and rural-dwelling survivors to enhance the heterogeneity of the respondent pool; 3. Describe the met and unmet health-related needs and their covariates in a large, stratified, random sample of childhood cancer survivors; 4. Evaluate the sample selection methods, length of time to complete recruitment, and response rates in the study sample.