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Spots Global Cancer Trial Database for Cushing´s Disease Epidemiology in Sweden

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Trial Identification

Brief Title: Cushing´s Disease Epidemiology in Sweden

Official Title: National Swedish Study in Cushing´s Disease Incidence and Outcomes

Study ID: NCT02350153

Conditions

Cushing Disease

Interventions

Study Description

Brief Summary: The purpose of this study is to study since 1987 all patients diagnosed with CD in Sweden and determine their outcomes including mortality. A secondary objective is to focus on patients in remission and identify determinants of their different outcomes.

Detailed Description: This study is a retrospective nationwide study of all patients in Sweden with diagnosis CD between 1987 and 2013 were baseline data at diagnosis, information about the different treatments and follow-up data is going to be obtained by reviewing patients' medical journals. This information as well as the exact diagnose criteria for each patient are going to be extracted by Endocrinologists in all University Hospitals in Sweden. An expert group at the Sahlgrenska University Hospital in Gothenburg will put together the data.By the use of the Swedish Personal Number, the investigators are going to obtain information about both patients' and background population co-morbidities which have been collected in the different Swedish Registers. Primary aim: To study mortality of CD in Sweden. Secondary aims: 1. To study the influence of CD on myocardial infarction 2. To study the influence of CD on stroke 3. To study the influence of CD on cancer 4. To study the influence of CD on hip fracture risk 5. To study incidence and prevalence of CD in Sweden.

Eligibility

Minimum Age: 18 Years

Eligible Ages: ADULT, OLDER_ADULT

Sex: ALL

Healthy Volunteers: No

Locations

Sahlgrenska University Hospital, Gothenburg, Vastra Gotaland Region, Sweden

Contact Details

Name: Gudmundur Johannsson, Professor

Affiliation: Vastra Gotaland Region, Sahlgrenska University Hospital

Role: PRINCIPAL_INVESTIGATOR

Useful links and downloads for this trial

Clinicaltrials.gov

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