Spots Global Cancer Trial Database for Medication Adherence and Non-adherence in Adults With Rare Disease
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Trial Identification
Brief Title: Medication Adherence and Non-adherence in Adults With Rare Disease
Official Title: A Longitudinal, Digital Study Using the Medication Adherence Reasons Scale (MAR-Scale) to Identify the Reasons for Non-adherence to Medications in Rare Disease
Study ID: NCT04541875
Interventions
Study Description
Brief Summary: The purpose of this study is to use the Medication Adherence Reasons Scale (MAR-Scale) to determine the extent of non-adherence to specific medications indicated to treat cystic fibrosis, hemophilia (A or B), idiopathic pulmonary fibrosis, myasthenia gravis, and sickle cell disease, and to identify the top patient-reported reasons for non-adherence. Internal reliability of the MAR-Scale will also be assessed in each condition.
Detailed Description:
Eligibility
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: Yes
Locations
Contact Details
Name: Elizabeth J Unni, BpharmMBAPhD
Affiliation: Touro College of Pharmacy
Role: PRINCIPAL_INVESTIGATOR
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