Spots Global Cancer Trial Database for Burden of Disease and Living Situation in Desmoid Patients
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Trial Identification
Brief Title: Burden of Disease and Living Situation in Desmoid Patients
Official Title: Burden of Disease and Living Situation in Desmoid Patients
Study ID: NCT06258421
Interventions
Study Description
Brief Summary: The main aim of the study is to assess the situation and quality of life of desmoid patients. Impaired areas of quality of life and the associated factors are to be identified. The survey is planned as a cross-sectional study (patient survey). Prevalent and incident desmoid patients will be identified at the University Hospital Mannheim and checked for eligibility. Quality of life and patient-reported data are collected by means of written questionnaires. Medical data is collected from patient files in the clinics. The aim is to include 100 patients. Descriptive analyses of the variables collected and regression models are planned as statistical analysis.
Detailed Description:
Eligibility
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Locations
Universitätsklinikum Carl-Gustav-Carus Dresden, Dresden, Saxony, Germany
Contact Details
Name: Martin Eichler, Dr., M.Sc. / PHD
Affiliation: Universitätsklinikum Carl-Gustav-Carus Dresden
Role: PRINCIPAL_INVESTIGATOR
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