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Brief Title: Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
Official Title: Registry for Patients With Desmoplastic Small Round Cell Tumor
Study ID: NCT04690374
Brief Summary: This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
Detailed Description:
Minimum Age:
Eligible Ages: CHILD, ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Memorial Sloan Kettering Cancer Center (All Protocol Activities), New York, New York, United States
Name: Emily Slotkin, MD
Affiliation: Memorial Sloan Kettering Cancer Center
Role: PRINCIPAL_INVESTIGATOR