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Brief Title: Liver Cancer Registry Platform
Official Title: JADE - Clinical Research Platform on Treatment and Outcome in Patients With Hepatocellular or Cholangiocellular Cancer
Study ID: NCT04510740
Brief Summary: The purpose of the project is to set up a national, prospective, longitudinal, multicenter cohort study with associated satellites, a tumor registry platform, to document uniform data on characteristics, molecular diagnostics, treatment and course of disease, to collect patient-reported outcomes and to establish a decentralized biobank for patients with Hepatocellular Carcinoma (HCC) or Cholangiocarcinoma (CCC) in Germany.
Detailed Description: JADE is a national, observational, prospective, longitudinal, multicenter cohort study (tumor registry platform) with the purpose to record information on the antineoplastic treatment of HCC or CCC in Germany. The registry will follow patients for up to three years. It will identify common therapeutic sequences and changes in the treatment of the disease. At inclusion, data in patient characteristics, comorbidities, tumor characteristics and previous treatments are collected. During the course of observation data on all systemic treatments, radiotherapies, surgeries, and outcome are documented. Health-related quality of life in patients with HCC / CCC will be evaluated for up to three years.
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Multiple sites all over germany, Multiple Locations, , Germany
Name: Thomas Berg, Prof.Dr.
Affiliation: Leipzig
Role: STUDY_CHAIR
Name: Peter R. Galle, Prof.Dr.
Affiliation: Mainz
Role: STUDY_CHAIR
Name: Wolf P. Hofmann, Prof.Dr.
Affiliation: Berlin
Role: STUDY_CHAIR
Name: Achim Kautz
Affiliation: Köln
Role: STUDY_CHAIR
Name: Philippe Pereira, Prof.Dr.
Affiliation: Heilbronn
Role: STUDY_CHAIR
Name: Karin Potthoff, Dr.
Affiliation: Freiburg im Breisgau
Role: STUDY_CHAIR
Name: Jan Schröder, PD Dr.
Affiliation: Mülheim an der Ruhr
Role: STUDY_CHAIR
Name: Robert Thimme, Prof.Dr.
Affiliation: Freiburg im Breisgau
Role: STUDY_CHAIR