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Brief Title: Presentation of First Time Attenders at Lymphedema Clinics
Official Title: Presentation of First Time Attenders at Lymphedema Clinics: Cross-sectional Study
Study ID: NCT03687749
Brief Summary: The first aim of this research project is to identify what factors motivate patients to seek assessment for early lymphedema and further, to gain insight into the signs and symptoms of developing lymphedema and the concurrent physical measurements. The second aim is to identify other sensory signs and symptoms and changes in body perception which may be perceived by the patient as reflective of lymphedema, and to identify to which degree they contribute to the patients' motivation to seek referral to lymphedema clinics.
Detailed Description: One of the most challenging morbidities after breast cancer treatment is lymphedema. Approximately 20% of women treated for breast cancer with axillary lymph node dissection will be diagnosed with lymphedema. Pre- and post-operatively, women are informed about changes suggestive of lymphedema and guided about seeking further assessment. The investigators presume that if symptoms occur, patients will seek assessment. However, it is unknown whether this is true or if those prospectively monitored present earlier for treatment, or whether other factors specifically drive patients to seek further assessment. Understanding the early experience and presentation of secondary lymphedema will improve patient education and detection programs.
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: FEMALE
Healthy Volunteers: Yes
University of Sydney, Faculty of Health Sciences, Sydney, New South Wales, Australia
University Hospital Leuven, Leuven, , Belgium
Name: An De Groef, PhD
Affiliation: Universitaire Ziekenhuizen KU Leuven
Role: PRINCIPAL_INVESTIGATOR
Name: Elizabeth Dylke, PhD
Affiliation: University of Sydney, Faculty of Health Sciences
Role: PRINCIPAL_INVESTIGATOR