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Brief Title: Treatment Decision-making in Patients With Recurrent High-grade Glioma
Official Title: Recurrent High-grade Glioma: Experiences of Patients and Their Close Relatives During the Treatment Decision-making Process.
Study ID: NCT04013828
Brief Summary: This qualitative study explores the lived experience of high-grade glioma patients and their close relatives at time of recurrence. With focus on the decision-making about treatment and care..
Detailed Description: High-Grade Glioma is a life-threatening disease that can cause the patient substantial physical, mentally and psychosocially impairment. The life expectancy is short, and a majority of patients experience recurrence of tumour growth. At time of recurrence, the treatment possibilities can include surgery, oncological treatment and/or palliative care. In this situation the patients and their close relatives need to make a difficult balancing between benefits and trade offs. Little is known about how the patients and their close relatives experience the recurrence and the decision-making process. The objective of this study is therefore to explore the perspectives, experiences and needs in patients and their close relatives in relation to the decision-making process at time of recurrence. Data will be generated through semi-structured interviews. Interviews will be analysed and interpreted using a Ricoeur inspired method of qualitative analysis. The study is part of a larger PhD-study.
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Copenhagen University Hospital; Rigshospitalet, Copenhagen, , Denmark
Odense University Hospital, Odense, , Denmark
Name: Frantz Rom Poulsen, Professor
Affiliation: Department of Neurosurgery Odense University Hospital DK-5000 Odense C DENMARK
Role: STUDY_DIRECTOR