Spots Global Cancer Trial Database for Physical Activity and Fatigue in Myasthenia Gravis

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Trial Identification

Brief Title: Physical Activity and Fatigue in Myasthenia Gravis

Official Title: Habitual Physical Activity in Patients With Myasthenia Gravis Assessed by Accelerometry and Questionnaire

Study ID: NCT03905473

Conditions

Myasthenia Gravis

Interventions

Accelerometer measurements

Study Description

Brief Summary: Danish patients with myasthenia gravis are asked to answer a validated and international questionnaire about physical activity. Also background questions about their disease and comorbidity are asked. To validate the data about physical activity from the questionnaires 69 patients are asked to wear an accelerometer for 7 days to measure activity level.

Detailed Description: Secure digital mails are sent to around1500 patients qua their civil registration number (CPR number) (each resident of Denmark has a permanent unique civil registration number that is provided at birth or immigration to Denmark). The mail contains a link for the software REDCap (© 2018 Vanderbilt University), recommended by Rigshospitalet. REDcap is a secure web application for building and managing online surveys and databases. Patients are, in REDcap, informed about the project, and if interested, asked to sign the included informed content and answer six validated and translated questionnaires.