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Brief Title: The Impact of Myasthenia Gravis in the Real World
Official Title: The Impact of Myasthenia Gravis in the Real World
Study ID: NCT04176211
Brief Summary: An international, non-interventional, prospective, community recruited, longitudinal, lifestyle study which aims to collect Real-World Evidence (RWE) from people living with myasthenia gravis (MG) in order to map the disease's natural history, its burden on patients and their families, its treatment, as well as its medical, social and pharmacoeconomic impact.
Detailed Description: Data was collected from people with MG using the MyRealWorld™ RWE platform , developed by the healthcare digital research company, Vitaccess. Participants downloaded a 'bring your own device' (BYOD) study app, MyRealWorld™ MG, onto their smartphones, which they used to enter data and complete surveys about their MG.
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Vitaccess Ltd, Oxford, , United Kingdom
Name: Mark JW Larkin, PhD
Affiliation: Vitaccess Ltd
Role: PRINCIPAL_INVESTIGATOR