Spots Global Cancer Trial Database for SIOPEN BIOPORTAL, An International Registry Linked to a Virtual Biobank for Patients With Peripheral Neuroblastic Tumours
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Trial Identification
Brief Title: SIOPEN BIOPORTAL, An International Registry Linked to a Virtual Biobank for Patients With Peripheral Neuroblastic Tumours
Official Title: SIOPEN BIOPORTAL, An International Registry Linked to a Virtual Biobank for Patients With Peripheral Neuroblastic Tumours
Study ID: NCT05192980
Interventions
Study Description
Brief Summary: The SIOPEN BIOPORTAL is a prospective non-therapeutic multi-centre international study aimed at developing an international Registry linked to a Virtual Biobank for all the patients with peripheral neuroblastic tumor within countries of the SIOPEN network. The overall aim of this study is to provide a GDPR-compliant framework to collect basic clinical annotations, biological and genetic features and information about the location on biospecimens for all the patients with a peripheral neuroblastic tumor including neuroblastoma, ganglioneuroblastoma and ganglioneuroma in the SIOPEN network. This study will support data and sample management and intensify cross-borders data and sample sharing fostering translational and clinical research. The post-hoc hypothesis formulated based on the data generated in this study will be used as statistical basis for future precision medicine programs based on improved biological characterization, patient stratification and therapeutic management.
Detailed Description:
Keywords
Eligibility
Minimum Age:
Eligible Ages: CHILD, ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Locations
CHU Amiens, Amiens, , France
Chu Angers, Angers, , France
H么pital Jean Minjoz, Besan莽on, , France
H么pital des enfants, Bordeaux, , France
Chru Brest, Brest, , France
CHU CAEN - F茅d茅ration de canc茅rologie - niveau 21, Caen, , France
CHU D'Estaing de CLERMONT FERRAND, Clermont-Ferrand, , France
DIJON H么pital d'enfants, Dijon, , France
Chu Grenoble, Grenoble, , France
Centre Oscar Lambret, Lille, , France
Centre L茅on B茅rard, Lyon, , France
H么pital d'Enfants de la Timone, Marseille, , France
H么pital Arnaud de Villeneuve, Montpellier, , France
Chr Nantes, Nantes, , France
CHU NICE, Nice, , France
Institut Curie, Paris, , France
H么pital Armand Trousseau, Paris, , France
H么pital Jean Bernard, Poitiers, , France
Chu Reims, Reims, , France
Chu Hopital Sud, Rennes, , France
H么pital Charles NICOLLE, Rouen, , France
H么pital Nord, Saint-脡tienne, , France
H么pital Hautepierre-CHU Strasbourg, Strasbourg, , France
H么pital des Enfants, Toulouse, , France
H么pital Clocheville, Tours, , France
CHU NANCY- H么pital d'Enfants, Vand艙uvre-l猫s-Nancy, , France
Institut Gustave Roussy, Villejuif, , France
Contact Details
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