Spots Global Cancer Trial Database for Study About Annoucement of the Diagnosis of Neurofibromatosis 1 in de Novo Forms
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Trial Identification
Brief Title: Study About Annoucement of the Diagnosis of Neurofibromatosis 1 in de Novo Forms
Official Title:
Study ID: NCT03298438
Interventions
Study Description
Brief Summary: Neurofibromatosis type 1 (NF1) is one of the most common autosomal dominant genetic disorders. The aim of our study was to evaluate post-traumatic stress disorder (PTSD) in patients and their families following the disclosure of sporadic NF1. Diagnosis of NF1 was retained according to NIH criteria, familial forms were excluded. The French version of the Impact of Event Scale-Revised was used for the diagnosis of PTSD.
Detailed Description:
Keywords
Eligibility
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Locations
CHRU de Brest, Brest, , France
Contact Details
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