Spots Global Cancer Trial Database for Polycystic Liver Disease Registry (UK)
The following info and data is provided "as is" to help patients around the globe.
We do not endorse or review these studies in any way.
Trial Identification
Brief Title: Polycystic Liver Disease Registry (UK)
Official Title: Polycystic Liver Disease Registry (UK)
Study ID: NCT04645251
Conditions
Interventions
Study Description
Brief Summary: Multicentre, observational registry studying the natural course of polycystic liver disease.
Detailed Description: The Polycystic Liver Disease (PLD) registry (UK) is the UK specific part of an international, multicentre, observational registry. The overall international PLD registry is led by Radboud University Medical Center, Nijmegan, Netherlands. Note- please direct any queries about the international registry to the team at Radboud University Medical Center. All patients with Polycystic Kidney Disease (PKD) with PLD or patients with Isolated (without PKD) Polycystic Liver Disease are eligible for inclusion (\>10 liver cysts). Data will be collected prospectively and retrospectively including a specific validated PLD questionnaire (PLD-Q). This registry provides us insight in patient characteristics, risk factors, symptoms, quality of life and treatment strategies in the biggest international PLD cohort so far. Results of this registry will be published and shared at national and international congresses.
Keywords
Eligibility
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: Yes
Locations
Radboud University Medical Center, Nijmegen, , Netherlands
Portmouth Hospitals University NHS Trust, Portsmouth, Hampshire, United Kingdom
Contact Details
Take Control of Your Skin and Body Changes Today.
Try out Spots for free, set up only takes 2 mins.
Join others from around the world:
