Spots Global Cancer Trial Database for A Registry for Patients With Systemic Mastocytosis in China

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Trial Identification

Brief Title: A Registry for Patients With Systemic Mastocytosis in China

Official Title: Mastocvtosis Collaborative Network of China: A Registry for Patients With Systemic Mastocytosis

Study ID: NCT06013683

Conditions

Systemic Mastocytoses

Interventions

Study Description

Brief Summary: The Registry for Patients With Systemic Mastocytosis in China is a voluntary, observational database that will capture demographic, socioeconomic, and disease information with systemic mastocytosis. No experimental intervention is involved.

Detailed Description: Systemic Mastocytosis (SM) is an extremely rare and heterogeneous spectrum of diseases characterized by the buildup of genetically altered mast cells in bone marrow sections and/or other extracutaneous organ(s). SM has not been given enough attention in China at present, and the epidemiological data in China are not clear. To understand the epidemiological characteristics and distribution patterns of SM patients in China. To establish a China-wide database platform for registering SM patients and to develop uniform registration standards and processes; to register SM patients who meet the enrollment criteria nationwide through a multicenter collaborative approach and to collect information on their baseline data, clinical manifestations, laboratory tests, treatment regimens, and follow-up results; to perform quality control and data cleansing on the information collected in the registration database, as well as to perform descriptive and inferential statistical analyses.