Spots Global Cancer Trial Database for Xeroderma Pigmentosum Patient Experiences
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Trial Identification
Brief Title: Xeroderma Pigmentosum Patient Experiences
Official Title: Xeroderma Pigmentosum: A Survey of Patient Experiences
Study ID: NCT01123694
Conditions
Interventions
Study Description
Brief Summary: Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers. The purpose of this study is to find out more about XP patient experiences and their quality of life.
Detailed Description:
Eligibility
Minimum Age:
Eligible Ages: CHILD, ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Locations
Henry Ford Medical Center, New Center One, Detroit, Michigan, United States
Contact Details
Name: Henry W Lim, M.D.
Affiliation: Henry Ford Hospital Department of Dermatology
Role: PRINCIPAL_INVESTIGATOR
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