Quantify the impact of the MOOC's membership on the CCS knowledge about LTFU adapted to the medical history of patients and measure how this MOOC can improve the LTFU care of each CCS.

Quantify the impact of the MOOC's non-membership on the CCS knowledge about LTFU adapted to the medical history of patients and measure how this MOOC can improve the LTFU care of each CCS.

Registrants will be offered a personalized e-education consisting of 3 to 11 modules adapted to the treatment received in childhood by each in the form of a MOOC entitled "Cancer in childhood, living well after" over a total duration of about 3 to 7 weeks of training.

MOOC

Patients will be followed up until 18 months only

No intervention

Claire BERGER, MD-PHD

Léonie CASAGRANDA, PhD

Claire BERGER, MD-PhD

Claire BERGER, PHD

Many studies have shown Childhood Cancer Survivors (CCS) are ill-informed about long-term follow-up (LTFU). Massive open online courses (MOOCs) could easily allow a deployment at an international level and make reliable information available for all CCS, wherever they live. The MOOC team (specialists of LTFU care, communication professionals and CCS associations), bringing together nearly 130 people, designed a MOOC named "Childhood Cancer, Living Well, After" including three modules addressing transversal issues (lifestyle, psychological support, fertility problems) and eight modules covering organ-specific problems.

Detailed data on childhood cancer treatments were used during a study of feasibility in spring 2020 to allocate specific modules to each participant. The aim of the present study is to quantify the impact of this MOOC on the CCS knowledge about LTFU adapted to their own medical history, but also to measure how this MOOC can improve the LTFU care of each CCS.

"Cohort multiple randomised controlled trial" design. Patients randomized "no MOOC" group will not be aware of the MOOC. Patients randomized group "with MOOC" will be composed of all former patients who will be offered the MOOC, whether they accept it or not

Personalized Massive Online Open Course After Childhood Cancer

Personalized Massive Online Open Course After Childhood Cancer: Impact Study START-MOOC2

The impact of the MOOC will be measured qualitatively by comparing the two groups "with MOOC" and "without MOOC" of the proportions of former patients with an overall adherence to the care pathway recommended to them.

The quiz concerns 3 modules : "Taking care of yourself after childhood cancer," "Feeling good about yourself, feeling good about yourself," and "Fertility: talking about it!". Global score = 300.

For each of the 8 specific modules assigned in a personalized way according to the former patients, the average score of the corresponding quiz, also presented in the form of a percentage of correct answers.

Study title	NCT ID	Conditions	Interventions	Eligibility	Organization	Link
Personalized Massive Online Open Course After Childhood Cancer	NCT05233189	Long-Term Survi...	MOOC No intervention	18 Years - 35 Years	Centre Hospitalier Universitaire de Saint Etienne
Personalized Massive Online Open Course After Childhood Cancer	NCT05233189	Long-Term Survi...	MOOC No intervention	18 Years - 35 Years	Centre Hospitalier Universitaire de Saint Etienne

Spots Global Cancer Trial Database for massive online open course