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Brief Title: Personalized Massive Online Open Course After Childhood Cancer
Official Title: Personalized Massive Online Open Course After Childhood Cancer: Impact Study START-MOOC2
Study ID: NCT05233189
Brief Summary: Many studies have shown Childhood Cancer Survivors (CCS) are ill-informed about long-term follow-up (LTFU). Massive open online courses (MOOCs) could easily allow a deployment at an international level and make reliable information available for all CCS, wherever they live. The MOOC team (specialists of LTFU care, communication professionals and CCS associations), bringing together nearly 130 people, designed a MOOC named "Childhood Cancer, Living Well, After" including three modules addressing transversal issues (lifestyle, psychological support, fertility problems) and eight modules covering organ-specific problems.
Detailed Description: Detailed data on childhood cancer treatments were used during a study of feasibility in spring 2020 to allocate specific modules to each participant. The aim of the present study is to quantify the impact of this MOOC on the CCS knowledge about LTFU adapted to their own medical history, but also to measure how this MOOC can improve the LTFU care of each CCS.
Minimum Age: 18 Years
Eligible Ages: ADULT
Sex: ALL
Healthy Volunteers: No
CHU de SAINT-ETIENNE, Saint-Étienne, , France
Name: Claire BERGER, PHD
Affiliation: Centre Hospitalier Universitaire de Saint Etienne
Role: PRINCIPAL_INVESTIGATOR