Neoplasms

Heart and Blood Diseases

Blood and Lymph Conditions

Immune System Diseases

All Conditions

Rare Diseases

Behaviors and Mental Disorders

Multiple Myeloma

Neoplasms, Plasma Cell

Neoplasms by Histologic Type

Hemostatic Disorders

Blood Coagulation Disorders

Vascular Diseases

Paraproteinemias

Blood Protein Disorders

Hematologic Diseases

Hemorrhagic Disorders

Lymphoproliferative Disorders

Immunoproliferative Disorders

Quality of Life

Patients complete the MyPOS questionnaire on quality of life

Myeloma Patient Outcome Scale (MyPOS)

Julia Dratva, Prof.Dr.med

In this study, the Myeloma Patient Outcome Scale (MyPOS) will be translated from English to German. This translated version will be quantitatively and qualitatively validated with patients with multiple myeloma.

Patients with multiple myeloma (N=10) will be interviewed in the qualitative phase about their comprehension of the translated MyPOS. The questionnaire will be revised according to the results of the interviews. This culturally adapted Swiss-German MyPOS will be assessed in the quantitative phase for its' psychometric properties with 200 patients with multiple myeloma.

Quality of Life in Patients With Multiple Myeloma-validation Study

Validation of the Myeloma Patient Outcome Scale (MyPOS) Assessing the Quality of Life in Patients With Multiple Myeloma in the German Speaking Part of Switzerland

The primary outcome will be the scores on each item of the culturally-adapted Swiss-German MyPOS. Items are scored on a five-point Likert scale. For the analysis, the three subscales "Symptoms" (range: 0-52), "Emotions" (range:0-68) and "Healthcare Support" (range: 0-12) are assessed as well as the MyPOS total score (range: 0-132 ) by summing up the item scores ranging from 0-4. Higher scores reflect worse quality of life.

The scores will be used to evaluate the psychometric properties of the culturally-adapted Swiss-German MyPOS:

* Structural validity,
* Internal consistency,
* Construct validity,
* Convergent and divergent validity.

Study title	NCT ID	Conditions	Interventions	Eligibility	Organization
Quality of Life in Patients With Multiple Myeloma-validation Study	NCT03537222	Multiple Myelom...	Myeloma Patient...	18 Years -	Zurich University of Applied Sciences
Quality of Life in Patients With Multiple Myeloma-validation Study	NCT03537222	Multiple Myelom...	Myeloma Patient...	18 Years -	Zurich University of Applied Sciences
Quality of Life in Patients With Multiple Myeloma-validation Study	NCT03537222	Multiple Myelom...	Myeloma Patient...	18 Years -	Zurich University of Applied Sciences

Spots Global Cancer Trial Database for myeloma patient outcome scale (mypos)