Paediatric cancer survivors, their parent/caregiver and health care professionals will be invited to express their views and perspectives in an interview with the researcher

Not Application as this is a qualitative study

Joyce Chung

This study aims to fill the gaps in knowledge regarding the effects of cancer and its treatment on Hong Kong Chinese paediatric cancer survivors, especially during the transition period, to further capture a deeper understanding of the challenges, views and needs of Hong Kong Chinese paediatric cancer survivors and the key stakeholders around them via face-to-face conversations.

Objectives: Although increasing attention has been devoted to the development of paediatric cancer survivorship programmes, most of these studies have originated in Western countries. Given the cultural differences between Asian and Western communities, the applicability of the findings to paediatric cancer survivors in Asian cultural contexts is limited. To date, research remains scant regarding the needs and challenges of Hong Kong Chinese paediatric cancer survivors and the key stakeholders involved during the transition period after cancer treatment. Although Hong Kong paediatric cancer survivors do attend regular medical follow-up visits, most attention has been focused on their physiological care, while their psychosocial needs remain unmet. Accordingly, the aim of this proposed study will be to fill the gaps in knowledge regarding the effects of cancer and its treatment, especially will focus on psychosocial effects in Hong Kong Chinese paediatric cancer survivors during the transition period.

Design and subjects: A qualitative descriptive design will be used. A purposive sample of 15 paediatric cancer survivor participants and their parents or caregivers, five paediatric oncology nurses and three paediatric oncologists will be invited for a semi-structured interview conducted with the aid of an interview guide.

Data analysis: A thematic analysis approach will be used for data analysis.

Expected results: The findings of this study will provide an in-depth understanding of the needs, challenges and views of paediatric cancer survivors and other key stakeholders, which will greatly facilitate the future development of appropriate targeted paediatric cancer survivorship programmes.

Needs Assessment to Guide the Development of a Paediatric Survivorship Programme in Hong Kong

Needs Assessment to Guide the Development of a Paediatric Survivorship Programme in Hong Kong to Promote Physical and Psychological Well-being of Children After Cancer Treatment

Semi-structured and open-ended questions will be used to collect qualitative data from the participants

Health and Medical Research Fund

The Hong Kong Polytechnic University

Symptoms and General Pathology

All Conditions

Death

Interviewees: terminally ill patients, families and healthcare providers of such patients

Joyce Chung, PhD

Weilin Chen, Master

The goal of this observational study is to explore experiences and perceptions of end-of-life communication in Chinese terminally ill patients, families and healthcare providers. The main question it aims to answer is:

• What are the experiences and perceptions of end-of-life communication in Chinese terminally ill patients, families and healthcare providers? Participants will be invited to either semi-structured in-depth interviews or focus group discussions to share their thoughts.

Objectives: To explore stakeholders' (patients, families and healthcare providers) experiences and perceptions of end-of-life communication in China; and understand culturally appropriate communication strategies.

Design and subjects: This study is a qualitative study. Eligible patients, family caregivers and healthcare providers will be recruited in two hospitals. Purposive sampling methods will be adopted. Semi-structured in-depth interviews with patients and family caregivers will be conducted respectively. Focus group discussions will be arranged with healthcare providers, allowing them to discuss end-of-life communication and generate group interactions and creative thinking.

Data analysis: The data analysis will be an iterative, cyclic and self-reflective process. Using inductive thematic analysis, common themes and categories will be determined through inductive reasoning and constant comparison.

Expected results: The study will fill the gap of no empirical evidence on end-of-life communication strategies from a Chinese perspective and enrich the knowledge about end-of-life communication.

End-of-life Communication From a Chinese Perspective

Development and Evaluation of a Culturally Specific End-of-life Communication Skills Training for Chinese Oncology Nurses

Interviews and focus group discussions will be conducted to collect qualitative data

Study title	NCT ID	Conditions	Interventions	Eligibility	Organization
Needs Assessment to Guide the Development of a Paediatric Survivorship Programme in Hong Kong	NCT05355779	Pediatric Cance... Survivorship	Not Application...	9 Years - 18 Years	The Hong Kong Polytechnic University
End-of-life Communication From a Chinese Perspective	NCT05734781	Terminally Ill	Not Application...	18 Years -	The Hong Kong Polytechnic University
End-of-life Communication From a Chinese Perspective	NCT05734781	Terminally Ill	Not Application...	18 Years -	The Hong Kong Polytechnic University
Needs Assessment to Guide the Development of a Paediatric Survivorship Programme in Hong Kong	NCT05355779	Pediatric Cance... Survivorship	Not Application...	9 Years - 18 Years	The Hong Kong Polytechnic University

Spots Global Cancer Trial Database for not application as this is a qualitative study