Spots Global Cancer Trial Database for International Registry of Congenital Portosystemic Shunt (IRCPSS)
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Trial Identification
Brief Title: International Registry of Congenital Portosystemic Shunt (IRCPSS)
Official Title: International Registry of Congenital Portosystemic Shunts (IRCPSS) - A Multi-centre, Retrospective and Prospective Registry of Neonates, Children and Adults With Congenital Portosystemic Shunts
Study ID: NCT06041906
Conditions
Interventions
Study Description
Brief Summary: Congenital Portosystemic Shunt (CPSS) is a rare condition important by the multiplicity and severity of associated complications. CPSS is venous anomaly in which blood coming from the intestines only partially passes through the liver. This leads to the accumulation of potentially toxic factors that cause systemic effects. Complications vary among the individuals, and currently, it is challenging to predict which individuals will develop severe complications. The IRCPSS registry is established with the aim of centralizing detailed clinical follow-up and biological information from participants around the world who suffer from Congenital Portosystemic Shunt (CPSS). A multidisciplinary consortium of experts is collaborating to enhance our understanding of the prevalence, natural history, individual risks, and physiopathology of the disease through the IRCPSS registry.
Detailed Description:
Keywords
Eligibility
Minimum Age: 1 Day
Eligible Ages: CHILD, ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Locations
Yale University School of Medicine, New Haven, Connecticut, United States
Royal Children's Hospital Melbourne, Parkville, Victoria, Australia
Universitary Clinics Saint-Luc, UCL, Brussels, , Belgium
The Hospital for Sick Children, Toronto, Ontario, Canada
Beaujon University Hospital, Clichy, , France
H么pital Bic锚tre-H么pitaux Universitaires Paris-Sud- Assistance Publique H么pitaux de Paris., Le Kremlin-Bic锚tre, , France
H么pital Necker, Paris, , France
Haunersche Kinderklinik - LMU Munich, Munich, , Germany
University of Tuebingen, Tuebingen, , Germany
"Agia Sofia" Children's Hospital, Athens, , Greece
" ATTIKON " University Hospital, Chaidari, , Greece
First Department of Pediatrics, Semmelweis University, Budapest, , Hungary
Department of Pediatric Hepatology Institute of Liver and Biliary Sciences, New Delhi, , India
Schneider Children's Medical Center of Israel, Petach Tikvah, , Israel
Children's Hospital Santobono, Naples, , Italy
Istituto di Ricovero e Cura a Carattere Scientifico (ISMETT), Palermo, , Italy
National Center for Child Health and Development, Tokyo, , Japan
Academic Medical Centre, Amsterdam, , Netherlands
University Medical Center Groningen, Groningen, , Netherlands
Hospital Cl铆nic de Barcelona, Barcelona, , Spain
H么pitaux Universitaires de Geneve (HUG), Geneva, GE, Switzerland
Gazi University, Faculty of Medicine, Yenimahalle, Ankara, Turkey
Koc University School of Medicine, Istanbul, , Turkey
Birmingham Children's Hospital, Birmingham, , United Kingdom
Royal Hospital for Children and Young People, Edinburgh, , United Kingdom
Leeds General Infirmary, Leeds, , United Kingdom
Royal Free London NHS Foundation Trust, London, , United Kingdom
Kings College Hospital, London, , United Kingdom
Contact Details
Name: Val茅rie A Mc Lin, Prof. Dr. med.
Affiliation: University Hospital, Geneva
Role: STUDY_DIRECTOR
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