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Brief Title: Resiliency Training for Adults With Neurofibromatosis Via Live Videoconferencing
Official Title: Resiliency Training for Adults With Neurofibromatosis Via Live Videoconferencing
Study ID: NCT03406208
Brief Summary: The aims of this study are to compare the effect and durability of two stress and symptom management programs tailored for patients with neurofibromatosis on quality of life and psychosocial functioning.
Detailed Description: The aims of this study are to compare the effect of two stress and symptom management programs tailored for patients with neurofibromatosis on quality of life and psychosocial functioning. We will also examine the degree to which treatment-dependent improvements in quality of life are mediated by improvements in depression, anxiety, distress, mindfulness, gratitude, social support, empathy, optimism, coping, pain intensity and pain interference.
Minimum Age: 18 Years
Eligible Ages: ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Massachusetts General Hospital, Boston, Massachusetts, United States
Name: Ana-Maria Vranceanu, PhD
Affiliation: Massachusetts General Hospital
Role: PRINCIPAL_INVESTIGATOR