Spots Global Cancer Trial Database for neurofibromatoses
Every month we try and update this database with for neurofibromatoses cancer trials from around the world to help patients and their families find trials that might be right for them.
We offer this 100% free of charge and do not endorse any of the trials listed here, we hope it helps you or a loved one.
The following info and data is provided "as is" to help patients around the globe.
We do not endorse or review these studies in any way.
| Study title | NCT ID | Conditions | Interventions | Eligibility | Organization | Link |
|---|---|---|---|---|---|---|
| Mindful Parenting - A Single Case Experimental Design Study | NCT05779527 | Parenting Alopecia Skin Condition Limb Difference Neurofibromatos... Craniofacial Cleft Lip and P... | Mindful Parenti... | 16 Years - | Cardiff University | |
| Use of RAD001 as Monotherapy in the Treatment of Neurofibromatosis 1 Related Internal Plexiform Neurofibromas | NCT01412892 | Neurofibromatos... Plexiform Neuro... Neurofibromatos... | RAD001: Everoli... | 18 Years - 60 Years | Assistance Publique - Hôpitaux de Paris | |
| Phase I Photodynamic Therapy (PDT) for Benign Dermal Neurofibromas (NF1) | NCT01682811 | Neurofibromatos... | Part 1 Levulan ... Part 1 Levulan ... Part 1 Levulan ... Part 1 Levulan ... Levulan (5-amin... Levulan (5-amin... Levulan (5-amin... | 18 Years - 90 Years | Medical College of Wisconsin | |
| Mindful Parenting - A Single Case Experimental Design Study | NCT05779527 | Parenting Alopecia Skin Condition Limb Difference Neurofibromatos... Craniofacial Cleft Lip and P... | Mindful Parenti... | 16 Years - | Cardiff University | |
| The Neurofibromatosis-associated Tumor Biobank | NCT03359304 | Neurofibromatos... | - | Peking University People's Hospital | ||
| Quality Improvement Project - "My Logbook! - I Know my Way Around!"; ("Mein Logbuch - Ich Kenne Mich Aus!") | NCT04474678 | Brain Tumor Neurofibromatos... Sarcoma Leukemia Hematologic Dis... Neuroblastoma | "My Logbook! - ... | 6 Years - 14 Years | Medical University of Vienna | |
| Dexmedetomidine and Propofol for Pediatric MRI Sedation | NCT03513757 | Headache Tumor Seizure Disorde... Neurofibromatos... Hydrocephalus Abdominal Neopl... Spine Deformity | propofol Dexmedetomidine Glycopyrrolate Lidocaine 1% In... Nitrous Oxide Sevoflurane | 12 Months - 60 Months | Medical College of Wisconsin | |
| Phase I Photodynamic Therapy (PDT) for Benign Dermal Neurofibromas (NF1) | NCT01682811 | Neurofibromatos... | Part 1 Levulan ... Part 1 Levulan ... Part 1 Levulan ... Part 1 Levulan ... Levulan (5-amin... Levulan (5-amin... Levulan (5-amin... | 18 Years - 90 Years | Medical College of Wisconsin | |
| Resiliency Training for Adults With Neurofibromatosis Via Live Videoconferencing | NCT03406208 | Neurofibromatos... Neurofibromatos... Neurofibromatos... Schwannomatosis | Stress and Symp... Stress and Symp... | 18 Years - | Massachusetts General Hospital | |
| Dexmedetomidine and Propofol for Pediatric MRI Sedation | NCT03513757 | Headache Tumor Seizure Disorde... Neurofibromatos... Hydrocephalus Abdominal Neopl... Spine Deformity | propofol Dexmedetomidine Glycopyrrolate Lidocaine 1% In... Nitrous Oxide Sevoflurane | 12 Months - 60 Months | Medical College of Wisconsin | |
| MEK Inhibitor Mirdametinib (PD-0325901) in Patients With Neurofibromatosis Type 1 Associated Plexiform Neurofibromas | NCT03962543 | Plexiform Neuro... Neurofibromatos... | Mirdametinib (P... | 2 Years - | SpringWorks Therapeutics, Inc. | |
| Use of RAD001 as Monotherapy in the Treatment of Neurofibromatosis 1 Related Internal Plexiform Neurofibromas | NCT01412892 | Neurofibromatos... Plexiform Neuro... Neurofibromatos... | RAD001: Everoli... | 18 Years - 60 Years | Assistance Publique - Hôpitaux de Paris | |
| The Neurofibromatosis-associated Tumor Biobank | NCT03359304 | Neurofibromatos... | - | Peking University People's Hospital | ||
| The Neurofibromatosis-associated Tumor Biobank | NCT03359304 | Neurofibromatos... | - | Peking University People's Hospital | ||
| The Neurofibromatosis-associated Tumor Biobank | NCT03359304 | Neurofibromatos... | - | Peking University People's Hospital | ||
| Resiliency Training for Adolescent Neurofibromatosis Patients Via Videoconferencing With Skype | NCT02387177 | Neurofibromatos... | Stress Manageme... Stress Manageme... | 12 Years - 17 Years | Massachusetts General Hospital | |
| Resiliency Training for Adults With Neurofibromatosis Via Live Videoconferencing | NCT03406208 | Neurofibromatos... Neurofibromatos... Neurofibromatos... Schwannomatosis | Stress and Symp... Stress and Symp... | 18 Years - | Massachusetts General Hospital | |
| MEK Inhibitor Mirdametinib (PD-0325901) in Patients With Neurofibromatosis Type 1 Associated Plexiform Neurofibromas | NCT03962543 | Plexiform Neuro... Neurofibromatos... | Mirdametinib (P... | 2 Years - | SpringWorks Therapeutics, Inc. |
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