Spots Global Cancer Trial Database for Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling
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Trial Identification
Brief Title: Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling
Official Title: Investigating Perspectives of Patients With Genodermatosis and Healthcare Professionals on Reproductive Counselling
Study ID: NCT06330350
Interventions
Study Description
Brief Summary: The goal of this observational study is to understand the perspectives and needs of patients with genodermatoses and their partners who wish to have children, regarding their decision-making process and their consideration of reproductive options. Additionally, the investigators aim to investigate the level of knowledge and perspectives of healthcare professionals (such as clinical geneticists, dermatologists and other clinicians involved), and want to explore to what extent patients and their partners are well informed about these reproductive options. To achieve this, the investigators will conduct individual semi-structured qualitative interviews with participants affected by genodermatoses (and their partners) and with healthcare professionals.
Detailed Description:
Keywords
Eligibility
Minimum Age:
Eligible Ages: CHILD, ADULT, OLDER_ADULT
Sex: ALL
Healthy Volunteers: No
Locations
Maastricht University Medical Center, Maastricht, Limburg, Netherlands
Contact Details
Name: Antoni Gostynski, MD, PhD
Affiliation: Maastricht University Medical Center
Role: PRINCIPAL_INVESTIGATOR
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