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Spots Global Cancer Trial Database for Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling

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We do not endorse or review these studies in any way.

Trial Identification

Brief Title: Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling

Official Title: Investigating Perspectives of Patients With Genodermatosis and Healthcare Professionals on Reproductive Counselling

Study ID: NCT06330350

Study Description

Brief Summary: The goal of this observational study is to understand the perspectives and needs of patients with genodermatoses and their partners who wish to have children, regarding their decision-making process and their consideration of reproductive options. Additionally, the investigators aim to investigate the level of knowledge and perspectives of healthcare professionals (such as clinical geneticists, dermatologists and other clinicians involved), and want to explore to what extent patients and their partners are well informed about these reproductive options. To achieve this, the investigators will conduct individual semi-structured qualitative interviews with participants affected by genodermatoses (and their partners) and with healthcare professionals.

Detailed Description:

Keywords

Eligibility

Minimum Age:

Eligible Ages: CHILD, ADULT, OLDER_ADULT

Sex: ALL

Healthy Volunteers: No

Locations

Maastricht University Medical Center, Maastricht, Limburg, Netherlands

Contact Details

Name: Antoni Gostynski, MD, PhD

Affiliation: Maastricht University Medical Center

Role: PRINCIPAL_INVESTIGATOR

Useful links and downloads for this trial

Clinicaltrials.gov

Google Search Results

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