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Brief Title: A Qualitative Case Study of the Experiences of Children With Cancer as They Learn About Their Diagnosis and Treatment
Official Title: A Qualitative Case Study of the Experiences of Children With Cancer as They Learn About Their Diagnosis and Treatment
Study ID: NCT02041689
Brief Summary: Thousands of children are diagnosed with cancer each year, many of whom will achieve long term survival due to advances in treatments and technologies. However, when a child is first diagnosed, they are confronted with a wealth of new and unfamiliar medical information that they must integrate in order to understand their diagnosis and treatment plan. Little is yet known about how children with cancer experience learning about their diagnosis and treatment in the hospital setting, or the individuals and materials that may help to facilitate the child's developing understanding. This information could help to identify or guide educational and supportive child life interventions to help children with cancer better understand their illness and its treatment. This observational study will collect data about how children currently learn about their cancer diagnosis and treatment in the hospital setting. The interventions used do not seek to change the health outcomes of the participants in this study. The observational data collected may serve to improve how future patients learn about their cancer-related diagnosis.
Detailed Description: This is a longitudinal qualitative case study, and no randomized interventions will be used. Instead, participants will complete two interview sessions, three guided activities, and observations with the primary investigator to explore their experiences of learning about their diagnosis and treatment in the hospital setting. PRIMARY OBJECTIVE: * The primary objective of this qualitative case study is to describe the ways in which children with cancer learn about their cancer diagnosis and treatment in the hospital setting.
Minimum Age: 7 Years
Eligible Ages: CHILD
Sex: ALL
Healthy Volunteers: No
St. Jude Children's Research Hospital, Memphis, Tennessee, United States
Name: Jessika Boles, MEd
Affiliation: St. Jude Children's Research Hospital
Role: PRINCIPAL_INVESTIGATOR