Nutritional and Metabolic Diseases

Gland and Hormone Related Diseases

All Conditions

Nervous System Diseases

Heart and Blood Diseases

Rare Diseases

Diabetes Mellitus

Stroke

Heart Diseases

Chronic Graft Versus Host Disease

Relational agent, "virtual counselor" for collecting family health history (VICKY: VIrtual Counselor for Knowing Your Family History).

Online family health history collection tool (MFHP: My Family Health Portrait).

VICKY

MFHP

Catharine Wang

A Relational Agent (RA) "virtual counselor" (VICKY: VIrtual Counselor for Knowing Your Family History) has been developed to collect family health history information for common health conditions including heart disease, stroke, diabetes, hypertension and various cancers. In this study, the investigators will conduct a randomized controlled trial (RCT) to compare the efficacy of using VICKY to the existing My Family Health Portrait (MFHP) tool for collecting family health history information among an underserved primary care patient population. The primary aims of the study are to 1) evaluate the efficacy of VICKY versus MFHP for collecting accurate family health histories and 2) determine whether accuracy varies as a function of health literacy. This project will obtain validation data on the efficacy of both VICKY and MFHP for collecting accurate family history data among an underserved patient population, in two languages (English and Spanish). The study will determine whether a virtual counselor can overcome many of the existing barriers to using traditional web-based family history tools.

Using Virtual Counselors to Overcome Genetic Literacy Barriers

Using Virtual Counselors to Overcome Genetic Literacy Barriers: Project VICKY

Sensitivity will be calculated using an interview with a genetic counselor as the gold standard. Sensitivity will be defined as the health conditions identified by the family health history tool (VICKY or MFHP) that were also identified by the genetic counselor (true positive) divided by the health conditions not captured by the tool but captured by the genetic counselor (false negatives) plus the true positives.

Accuracy of family members identified will be defined as the agreement of first and second degree relatives identified by both the tool (VICKY or MFHP) and the genetic counselor.

Communication of family health history with family members and health care providers.

Study title	NCT ID	Conditions	Interventions	Eligibility	Organization	Link
Using Virtual Counselors to Overcome Genetic Literacy Barriers	NCT02344433	Heart Disease Stroke Diabetes Cancer	VICKY MFHP	21 Years -	Boston University
Using Virtual Counselors to Overcome Genetic Literacy Barriers	NCT02344433	Heart Disease Stroke Diabetes Cancer	VICKY MFHP	21 Years -	Boston University

Spots Global Cancer Trial Database for vicky

Every month we try and update this database with for vicky cancer trials from around the world to help patients and their families find trials that might be right for them.
We offer this 100% free of charge and do not endorse any of the trials listed here, we hope it helps you or a loved one.

Spots Global Cancer Trial Database for vicky

Every month we try and update this database with for vicky cancer trials from around the world to help patients and their families find trials that might be right for them. We offer this 100% free of charge and do not endorse any of the trials listed here, we hope it helps you or a loved one.

Every month we try and update this database with for vicky cancer trials from around the world to help patients and their families find trials that might be right for them.
We offer this 100% free of charge and do not endorse any of the trials listed here, we hope it helps you or a loved one.