Nervous System Diseases

All Conditions

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Spinocerebellar Ataxia

Participants will engage in a live zoom exercise session. Participants will undergo 45 minutes of aerobic exercise intervention, three times a week, for a period of 12 weeks. Exercise will include repetitive bouts of high intensity exercises with intermittent periods of rest or active recovery. circuit of moves like 'jabs', 'hooks' etc, and a strength and endurance class that promotes postural awareness.

Participants will undergo 45 minutes of aerobic exercise intervention, three times a week, for a period of 12 weeks, using a pre-recorded class that they can do according to their own schedule. Exercise will include repetitive bouts of high intensity exercises with intermittent periods of rest or active recovery. circuit of moves like 'jabs', 'hooks' etc, and a strength and endurance class that promotes postural awareness.

Exercise will include repetitive bouts of high intensity exercises with intermittent periods of rest or active recovery. circuit of moves like 'jabs', 'hooks' etc, and a strength and endurance class that promotes postural awareness.

Seated exercise

Kathleen Friel

To assess the impact of a 12-week virtual seated physical intervention on cardiovascular health and wellness in people with chronic neurological impairments (CNI).

This study aims to examine how effective seated Zoom exercise classes are for a person with CNI for addressing cardiovascular health, physical wellness and quality of life. If these classes prove to be effective, online platforms could be a viable avenue for those with CNI to exercise and increase/maintain wellness without having to leave their homes. The investigators are also attempting to determine if a class with a live instructor vs a pre-recorded class has an effect on motivation, compliance, exertion and modifications/safety.

The entire process, including screening and consenting, will be done via Zoom and Redcap, potentially providing a blueprint for the future studies. This process can enable participants to participate in studies with minimal inconvenience, expense and effort of traveling for the consent process.

One group will attend live zoom classes with instructor feedback, and the other group will exercise using pre-recorded sessions.

Home Based Tele-exercise for People With Chronic Neurological Impairments

We plan to use the concept, methods and analysis as a framework to develop evidence-based protocols for future cohorts and studies. We have made a commitment to publish all relevant scientific information in a timely manner. Unpublished information may be available to interested individuals or organizations by request to the Principal Investigator.

Heart rate on last day of training compared to heart rate on first day of training

a 36-item instrument used to measure an individual's perceived health status in physical, psychological, emotional, intellectual, spiritual, and social wellness constructs

a self-assessment measure of enjoyment with their current physical activity

measures physical health and mental health

standardized instrument for pain assessment in clinical and research practice. It is an 11-point scale from 0 (no pain) to 10 (the most intense pain) at rest and during movement

standardized measure to evaluate perceived intensity of exertion, effort, and fatigue during physical exercise

is a 24-item scale to assess the reason that motivates a person to exercise

Burke Medical Research Institute

Study title	NCT ID	Conditions	Interventions	Eligibility	Organization	Link
Home Based Tele-exercise for People With Chronic Neurological Impairments	NCT04564495	Neurologic Diso... Stroke Spinal Cord Inj... Cerebral Palsy Hemiplegia Hemiparesis Multiple Sclero... Parkinson Disea... Trauma, Brain Transverse Myel... Friedreich Atax...	Seated exercise	18 Years - 75 Years	Burke Medical Research Institute
Home Based Tele-exercise for People With Chronic Neurological Impairments	NCT04564495	Neurologic Diso... Stroke Spinal Cord Inj... Cerebral Palsy Hemiplegia Hemiparesis Multiple Sclero... Parkinson Disea... Trauma, Brain Transverse Myel... Friedreich Atax...	Seated exercise	18 Years - 75 Years	Burke Medical Research Institute

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